You are currently browsing the monthly archive for June 2008.
It took a little longer than expected, thanks to the weather, but we are here. It was about 98 degrees when we got in!!!!!!!!!!!! It should cool off a little for the next couple of days, but storms and hot weather are on deck. We have our first appointment with Dr. Marsh today. So we are going to get out of this room for awhile now that our oxygen has been delivered. The Haven House is a nice facility. Although it felt like Anarctica in our room last night. Even Kevin said it was too cold. They turned down the air this morning, much better. I will try to update later on how the appointment went.
well it is about 9:15 and we are about to head out on our road trip to St. Louis. Hopefully the weather will cooperate. We don’t need any tornado warnings like we had yesterday!!!!!
I started eating cereal. Of course at first I am not so sure about this. But by the end of it I could not get it in my mouth fast enough. Not to mention I love chomping on my spoon too!
I love being soooo messy!!!!!!!!!
And just because my mommy & daddy think I am so cute here is another picture of me!!!!!
I love playing with my feet, although I can’t quite get them in my mouth, YET!
••••••••••
Well we leave Sunday for St. Louis. Monday we meet with the surgeon and Tuesday we meet with the speech pathologist. And then Thursday is the big day. The thing I am most nervous about is seeing her after surgery. I hope I can keep it together. We just found out they have wireless internet where we are staying so I will try to post as much as possible from the road. Of course on Saturday we have to fit in a few house things before we leave. We are going to try to get Kev’s parents moved in by the end of June. Here is a peek at our house. 
We sure have a lot to do in a month!!! (Or should I say Kev has a lot to do, he he)
until Regan’s surgery. We will be leaving for St. Louis on Sunday. We have Dr’s appointments on Monday & Wednesday and then the surgery is on Thursday. For those of you who don’t know Regan was born with a rare condition called Beckwith-Wiedemann Syndrome. It is an overgrowth syndrome that occurs in about 1 in 15,000 births. Regan is having tongue reduction surgery which is one of the main characteristics of the syndrome. She also has a higher chance of getting kidney or liver cancer in childhood. So she will also be getting ultrasounds every 3-4 months until around the age of 8. We have a long road ahead but the good news with this syndrome is that it seems to get better with age. I am very nervous for the surgery, mostly for what her tongue will look like right after surgery. And of course knowing she won’t understand why this is happening to her. I am hoping to be able to keep everyone updated from St. Louis. We would really appreciate if you could say a little prayer for Regan’s safe recovery.
Lovecreatebuild's Weblog 